Maulik Patel was diagnosed with sarcoma, a type of cancer.
Strong psychological support, combined with early and appropriate medical intervention, is vital to help sarcoma patients navigate their difficult journey.
A diagnosis of sarcoma, a rare and often aggressive form of cancer, carries a profound psychological burden. Patients face a range of emotional challenges from the moment they are diagnosed, throughout their treatment, and during ongoing follow-up.
Importance of early diagnosis and treatment
Dr Manit Gundavda, Consultant Orthopaedic Oncologist at Kokilaben Dhirubhai Ambani Hospital, Mumbai, says: “The initial diagnosis of sarcoma is often a shock. Patients may experience a whirlwind of emotions, including disbelief, fear and anxiety. The rarity of the disease can add to the distress as patients grapple with the uncertainty and potential severity of their condition. An accurate and timely diagnosis is crucial for the psychological well-being of sarcoma patients.” Early and appropriate treatment can alleviate initial fears, providing a clearer understanding and a more optimistic outlook. Knowing that they are receiving the best care increases hope, mitigating feelings of helplessness and fostering a positive state of mind.
Treatment: How to deal with physical and emotional stress
The treatment phase, which typically includes surgery and/or chemotherapy, in addition to radiation therapy, presents significant psychological challenges. “Physical side effects of treatment, such as fatigue, pain, and changes in body image, can exacerbate emotional distress. Support from mental health professionals, peer support groups, and family can be crucial in helping patients cope with this period,” adds Dr. Gundavda.
Surveillance: The long road ahead
Even after completing initial treatment, sarcoma patients face ongoing psychological challenges during the follow-up phase. Dr. Gundavda shares, “The fear of recurrence, often referred to as ‘imaging anxiety,’ can be overwhelming. Regular follow-up appointments and imaging studies serve as constant reminders, and patients may also struggle to adjust to a new normal, balancing the relief of having completed treatment with lingering uncertainty about their future.”
Holistic support is essential
Addressing the psychological impact of sarcoma requires a holistic approach. The psychological impact of sarcoma is profound and multifaceted, affecting patients from diagnosis through treatment and long-term monitoring.
“It is essential to integrate psychological support into standard care, including support groups and counselling. Healthcare providers play a crucial role in ensuring comprehensive care that addresses both physical and emotional well-being,” believes Dr Gundavda.
In conclusion, strong psychological support, combined with early and appropriate medical intervention, is vital to help sarcoma patients navigate their difficult path.
